Not your typical Thursday…

We are currently sitting in day medicine watching blood drip ever so slowly into our baby girl.  Dr. R  came over to discuss the details of the day, and reminded me again that transfusion is really our only option for alleviating Lucy’s cardiac symptoms.  On Christmas Eve we received a call from Lucy’s cardiologist.  The results from Lucy’s Holtor monitor revealed what we suspected. ...

The Holiday Rush…

Christmas is coming, and with four little ones in our house you can imagine the excitement brewing around here!  Letters to Santa have been written and rewritten, finalized, and sent.  We have a visitor from the North Pole who has taken to hiding in various places around our house.  Jack thinks he is a spy of sorts, Sophie asked if he was a tattle tale, nobody wants Lucy to touch him...

More appointments…

Today was filled with even more appointments, this time at DuPont.  Last Thursday when we met with Dr. R it was determined that we needed to see Lucy’s cardiologist a.s.a.p.  We received a call yesterday saying that they could see Lucy today at 1:30.  I know, I know, we are gluten for punishment.  Two days in a row where our girly had to forgo her typical four hour nap, it has...

Appointments…

Last week Thursday we had through and emotional appointment with Dr. R….I am working on a post about that appointment that I will post when I am finished.  In the mean time, we are scheduled to see the top motility specialist at CHOP today.  We were originally scheduled to see this specialist on October 26th…well, we know what happened then.  We are hoping that they will have some...

Some things…

I know, I am behind in updating.   A friend asked me recently if no news was good news?  I think, that recently, no news means that I have been too tired to blog and I don’t know how to put into   words all of the things that have been going on in our world.  I want so badly to write about nothing…about mundane everyday things… about how the stress of the holidays is...

So much change, so little time…

To write that is, life has been busy in the Marlett house.  I want to apologize to anyone who has called, e-mailed, texted, or tried to communicate with us in, let’s just say,  the last month or so, it has been difficult to find the time to talk , type, or get together.  Please, please, know that we love hearing from you and  will get back to you…soon, I hope. There are so many...