We have a lot to be thankful for! Our life for starters, we love our family and all, well maybe not all but most, of the stuff that goes along with that. We love that we have been given the opportunities to raise four very different, very loving, very individual, very silly, very messy, very kind, and very special human beings! Each one of them has their own individual needs and we are trying our best each and every day to meet those needs. It’s not always easy, as anyone who has had a role in raising children can attest to, but we are doing the best we can.
I was able to schedule what seems like a bazillon appointments for Lucy and some for the rest of the gang yesterday and today. I am hoping that by the end of the month we will be able to look back and feel a sense of relief. With every appointment comes more fears and questions, but when we think back to where we were a year ago we have gotten more answers than we ever thought we had questions for. We prayed for answers more than we have ever prayed for anything in our lives, and we are so grateful that we know a little about what we are facing. It is difficult not knowing what the future holds for our littlest one, but none of us really knows what tomorrow will bring, so we are choosing to live life to it’s fullest, this is not always easy but we are trying! I wish at times that we could just forget about all of the appointments, feeding tubes, and medicines, but doing that would not be in Lucy’s best interest. With every appointment, lab test, procedure, and medication we ask ourselves if this is going to make a difference in Lucy’s life, if the answer is “yes” than we choose to look at it like an opportunity to give Lucy the best chance in life.
We are choosing to be grateful for the life we have been given! This is no to say that we have not felt an overwhelming sadness at times when we look at Lucy’s struggles. I can assure you that I have cried more tears in the shower than there has been water. I can also assure you that we have learned more in the last year than we have in our entire lives! We have been touched by people who are experiencing similar struggles, we have been touched by people facing far greater struggles, by friends we have known for years, by friends we have only recently met, by neighbors who really do want to help out a family in a time of need, by total strangers who have heard about our family and are thinking and praying for us. We have so much to be grateful for and we just wanted to let you know. Thank you for all of your thoughts and prayers, they mean so much!