Drew and I met with our beloved doc this afternoon to discuss our reality, Lucy's reality. There is nothing more that we can do for our girl medically, to fix what is causing her pain. Comfort care is really the only option left remaining.
I won't go into any more detail tonight, my head is spinning with too many thoughts and my eyes are really red and swollen from crying.
I will say this...we love so much, which is why we are hurting so much.
To all of the amazing people in our life who love and support us through the good times and the bad, thanks, we could never do this alone!
Sleeping Beauty's preferred position for sleeping, sideways in her crib with her legs propped up and hanging over the side rail. She has figured out how to alleviate the pressure on her bladder. We realize that this looks dangerous, but she is unable to move on her own so she's safe…it's comfort care.