Thursday, January 2, 2014

Reality...

It hit us hard today!

Drew and I met with our beloved doc this afternoon to discuss our reality, Lucy's reality.  There is nothing more that we can do for our girl medically, to fix what is causing her pain.  Comfort care is really the only option left remaining.

I won't go into any more detail tonight, my head is spinning with too many thoughts and my eyes are really red and swollen from crying.

I will say this...we love so much, which is why we are hurting so much.

To all of the amazing people in our life who love and support us through the good times and the bad, thanks, we could never do this alone!


 Sleeping Beauty's preferred position for sleeping, sideways in her crib with her legs propped up and hanging over the side rail.  She has figured out how to alleviate the pressure on her bladder.  We realize that this looks dangerous, but she is unable to move on her own so she's safe…it's comfort care.

18 comments:

Helen A said...

Reality sucks! I am praying for comfort. 🙏

Anne Kerr Thomas said...

Praying and hoping for comfort. Thoughts and prayers are with u guys today more then ever. Xoxo

erin chretien said...

Isaiah 66:13 NIV

As a mother comforts her child, so will I comfort you; and you will be comforted over Jerusalem.”

Sheila said...

You don't know me but I have been following your blog for over a year...praying for comfort for you lovely daughter and peace for your family

The Healey's said...

We are praying for you. With Love Kelly

Reagan Leigh said...

So sad for you and your girl!

natb said...

Continued prayers for all of you

Kim Anderson said...

We are praying for comfort for the entire family. Remember that the Heavenly Father never walks away. He is with you always.

mary jane c said...

I remember Lucy when she was just a baby. What a journey she has been through- can't believe it has been 5 years! I will keep your entire family in my prayers. Give a big hug to Megan from Mrs. Cole:)

Karen Mrozinski said...

Even though we have moved so far away from you, you all are always in our thoughts and prayers. The Mrozonskis

Krissy said...

Lifting you all in prayer. Praising God that His word says He'll never leave us, or forsake us.

Carrie said...

Hating mito and what it is doing to your baby... Sending you strength, prayers and hugs.
Love from The Mullin Family

Kim said...

Continuing to pray for Lucy's comfort; as well as for heavenly comfort and peace for your whole family!

Clara-Leigh said...

I am praying for her comfort and for healing for your family's broken hearts. Mito is about the most cruel thing I can ever imagine. I am so sorry so many of our families are affected, but most of all, I am so so so sorry for all of this pain and the tough words you heard today. So wish I could kill Mito....someday isn't soon enough.

Jen said...

I'm so, so sorry that this is the reality. Holding you all close in prayer.

anita said...

I am so sorry to hear this! The pain and overwhelming facts. The enormity and unknown and unfairness. My prayers are surrounding your heart. Perhaps the hardest part of love is letting go. You have loved Lucy so thoroughly and given her so much in life! May the grace of God give you the strength and grace and clarity of mind and the knowledge of how to comfort these days! Prayers for all the rest of your family too!!!

Kristina said...

Nicole- My heart is so heavy reading this. Comfort care isn't something we expected just yet even though you have been so up front and open about Lucy's current state. We are always praying for her and all the Marletts.

I'm not the best with words of comfort, but we will continue to hold the entire Marlett family up in prayer. Especially for strength for you and Drew for when you have to discuss this with the kids.

Sending much love and prayer your way.

LisD said...

My heart breaks. I will pray for you all!