The hardest part of loving someone...
is letting go.
Our goals for Lucy have always been to give her the best longest life…we did that, and now it's time to let her go.
I can't believe that I am writing this post! Mitochondrial disease has taken its toll on our little girl's body. It is because we love Lucy with all of our hearts that we are incapable of letting her suffer. Our focus remains as it always has, to keep Lucy comfortable.
Our hopes of taking Lucy home have changed, we are choosing to live out the reaming time that Lucy has here on this earth at our "home away from home". We feel so supported and surrounded with love! Words can not express how unbelievably grateful we are for the love and support, thoughts and prayers of so many of you.
Not unlike her life which defied all odds, we are expecting her end of life to be the same. It will be a process of letting her go.