Friday, January 10, 2014

For the Love of Lucy...

The hardest part of loving someone...  



is letting go.

Our goals for Lucy have always been to give her the best longest life…we did that, and now it's time to let her go. 

I can't believe that I am writing this post!  Mitochondrial disease has taken its toll on our little girl's body.  It is because we love Lucy with all of our hearts that we are incapable of letting her suffer.   Our focus remains as it always has, to keep Lucy comfortable.

Our hopes of taking Lucy home have changed, we are choosing to live out the reaming time that Lucy has here on this earth at our "home away from home".  We feel so supported and surrounded with love!     Words can not express how unbelievably grateful we are for the love and support, thoughts and prayers of so many of you.

Not unlike her life which defied all odds, we are expecting her end of life to be the same.  It will be a process of letting her go.


25 comments:

Sara said...

Lucy is a remarkable girl as is your family. I have followed Lucy's story since 2010. My heart aches for all of you. Your grace through this, the toughest journey, is amazing. You have done the best possible under the worst of circumstances. I pray for peace for Lucy and all of you.

Sara K.

Betsy said...

I'm so very sorry for your family. Praying for you...

Kim said...

To know Lucy IS to LOVE Lucy!! Lucy is such a blessing & was blessed with two amazing parents. Praying for all of you during this most difficult time.

Jessica said...

I just got caught up on the blog starting at the beginning of this hospitalization. My heart is breaking for you in so many ways. Lucy has always reminded me of my own sweet girl; so many of there complication and mannerisms are the same, right down to severe bladder inflammation and pain, that Eithene used to try and alleviate by keeping her feet up on a pillow at all times much of the last few months of her life. Just know that your beautiful redhead and your family will be close to my heart and in my prayers more than every before. If you don't already have it, I recommend a book called "There's a Party in Heaven" (http://www.bowerfamilybooks.com/theresapartyinheaven.aspx) It is a beautiful children's book with a joyful comforting text and gorgeous pictures of what is waiting for us after this life. Eithene found great comfort in it, and Gabriel does too. I don't know how awake Lucy is, but it is a beautiful book to help siblings process as well. I'm sending all of my love and prayers for peace in every heart in your family.

Cory said...

Dear Nicole and family,
You are constantly in my heart and in my prayers. Your love is amazing, steady, and unfailing. What goodness Lucy brings to the world. From my family to yours, peace and prayers.

jenchong said...
This comment has been removed by the author.
Mary Hoffpauir said...

Dearest friend...I have followed your blog for awhile now...my husband's niece also has this disease. You are such an awesome mom!! I have never seen such love and care that seem to come from all of you for Lucy!! I pray that her last days are the sweetest days!! May God wrap His loving arms around all of you and give you comfort! You are all in my prayers!!

Jen said...

Mom-to-mom, I am sending soooo much love to you & All the Marletts. Lucy is so very lucky for such a loving, thoughtful family. She is one special girl.

Janus said...

So sorry for all of your pain... but amazed by all of your love. Praying for your family... every day
Jess L.

Kim Anderson said...

Im just heartbroken to hear this. Praying for Gods peace to cover your family.

eckman fam said...

praying...

Kelly said...

Prayers for strength for you and your family during this most difficult time. I lost my fourth child (under very different circumstances) about 7 months ago. May you find peace and comfort in the days ahead. I will send up a prayer to my Josh to make sure all the little ones in heaven are ready to welcome Lucy. If you need to talk, please feel free to contact me at kellysmedley@gmail.com.
With Love, Kelly

mito kid said...

I'm very sorry that your family is having you go through this. You guys have given Lucy such a wonderful and full life. I pray that in the following days you all find peace as she beings her final journey.

Juliet's Mom said...

Lucy is such a courageous little girl.I am so sorry that this crappy disease is winning. No one gave a better fight than your family. All our love and prayers for a peaceful time right now. So very sorry.

Kimberly Hoffman said...

Nicole and Drew, it breaks my heart to read your post so I can't even imagine what you and the family are going through. I know that you are such a strong and loving family that will forever be touched by such a precious gift as Lucy. Know that we are thinking of you in this difficult time and always in our prayers.
Kimberly and Chris Hoffman

Kimberly Hoffman said...

Nicole and Drew,
My heart is breaking for you and the kids. I know you all will forever be touched by the special gift you have been given in Lucy. Know that you are in our thoughts and prayers.

Love, Kimberly & Chris Hoffman

Clara-Leigh said...

What a fighter. What an angel. Strange how the most fragile-looking, sweet creations can be the biggest heroes of all time. We keep you in our prayers. I cannot imagine. Much love and many prayers,
Clara-Leigh and family

The Healey's said...

May God be with you and your family while He helps Lucy find comfort. I so wish I could take away the pain. You all love her so much.
Love from us. Praying.....

Chris Mueller said...

Nicole and Family!! We have been and will continue to keep your family in our thoughts and definitely our prayers! You are an amazingly strong, loving, compassionate, generous, thoughtful, and feeling family! We have lived every minute of Lucy's life through your words and I feel as though we have been there with you!! As I hold back the tears, I know they are preparing an amazing place for Lucy! I pray for a peace that passes all understanding for all of you during this difficult time! Love and prayers, The Muellers

Chris Mueller said...

Nicole and Family!! We have been and will continue to keep your family in our thoughts and definitely our prayers! You are an amazingly strong, loving, compassionate, generous, thoughtful, and feeling family! We have lived every minute of Lucy's life through your words and I feel as though we have been there with you!! As I hold back the tears, I know they are preparing an amazing place for Lucy! I pray for a peace that passes all understanding for all of you during this difficult time! Love and prayers, The Muellers

Heidi said...

With tears in my eyes I read your heartbreaking words... Lucy's beautiful button has been sitting on the right side of my blog for years now. No words to express my heart ache for your amazing family. Praying for peace and comfort for Lucy and her siblings as her time grows near. There will always be a special place in my heart for your brave girl and family. Thanks for continuing to share her journey with us. Lots of love, hugs and prayers- Heidi.

Carrie said...

My heart is breaking for you and the tears continue to fall... Sending continued love, support and prayers.

Carrie Mullin
Patrick's Mom

Kristina said...

Sweet Lucy! You are surrounded by love. Drew and Nicole my heart breaks for you daily. I simply can't imagine and I admire what powerful parents you have been through Lucy's while life with Mito. My prayers are for you all to feel peace as these difficult days pass. Love to you all!

Sara Eaton said...

your strength and love for one another is so amazing and pure. We continue to pray for those very things, including comfort and peace. Sending our love,
The Eatons ♥

Clarissa said...

Praying with all of my heart for you all. I know without a doubt that Lucy has lived a purposeful life and God has used her... and her life will continue to be used for His glory! May God be your strength! HE WILL CARRY YOU!