Lucy has been experiencing withdrawal symptoms. She has been a lot more irritable, jumpy, and sweaty the past 24 hours. She woke every four hours in pain last night and required some PRN doses of Dilaudid to get through it. Of course when Dr. R came in to see her this morning she was charming and pleasant, the moment he left, her mood changed…go figure. We adjusted her PRN dosing today in hopes of giving Lucy the pain relief she needs at the same time attempting to decrease her dependency on the med. She did have a good nap today which helped some with her mood, but what helped her mood the most was seeing the kids tonight. Distraction is a good form of medicine!
Lucy had a renal scan today, it looks like we may have to repeat it as they were unable to get all of the information that they needed from it. Lucy was having a difficult time with pain when they tried to scan her left kidney, she was not very cooperative and therefore they were unable to gather all of the data that they needed to make a report. Her right kidney, however, appears normal.
We pulled Lucy’s Foley last night, and good new so far she is going on her own, but does have some residual left in her bladder. It is unclear yet what we are going to do about it. We are going to give her another 24 hours before we make any decisions.
I am experiencing some withdrawal symptoms myself, withdrawal from life. I am so grateful for the opportunities I get to have with Lucy, but I miss being together as a family under the same roof. The kids are really doing remarkably well, and have not been asking as much when Lucy and I are coming home because they know that it must be soon if we are leaving for Disney on Sunday. I’m hoping and praying for that! Drew and I discussed tonight that it will be a tough weekend if for one reason or another plans change.
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I just want to let you know that I'm thinking of you. You're wonderful mother and doing excellent job!! We're praying hard especially this week!!!
Love, Fumie
I pray that Lucy continues to head in the right direction and I'm REALLY praying for your Disney trip! I hope you can go and that everyone is able to enjoy it fully!
Heather & Lindsey
I'm glad to hear about the positive progress Lucy is making, although I'm sorry that she is still having a hard time with the pain and withdrawal. I hope her left kidney looks as good as her right and that you will get to leave for your trip this Sunday. I will keep Lucy and your family in my prayers.
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