We were here,
running to and fro
on Capital Hill.
We were lobbying with the United Mitochondrial Disease Foundation, meeting with our representatives and senators asking them to support legislation for primary mitochondrial disease research .
And tonight, we are here,
at the “hotel” DuPont, admitted for fevers and an occluded line, Lucy decided to throw that in at the last minute to make things even more exciting. We left DC abruptly this afternoon when Lucy’s temps went above and beyond our cut off for fever. Cultures are cooking, labs were drawn, urine collected, and an ear infection detected in her right ear. Her line has been TPA’d and is flowing like a river once again, but I will have to let you know about her cultures sometime tomorrow. Please pray for “just” an ear infection and for negative cultures.