After what I believe was one of the shortest hospital stays in the history of hospital admissions for us, we came home.
Lucy is not any better than when we brought her through those doors yesterday afternoon. Truth be told, she really isn't going to get any better.
There was nothing too outstanding in Lucy's lab work that indicated to us that there is something treatable going on with our girl. Sadly, what we are seeing in Lucy is as a result of her disease progressing...her body is getting tired.
I could see the love and concern on the faces of so many who know and care for us, who love our girl, as they came by to visit with us today. Lucy is different, but still Lucy, just different. It's so hard to explain, much less try to put into words. But when you see her...you can see exactly what I am unable to describe in words.
The good doc came in this morning to talk to me even thought he wasn't scheduled to be at the hospital today. Lucy cried when she saw him, oddly that made us all feel a little better. He shared with me that this, going through the end of life with our girl, is going to be difficult...confusing...frustrating...painful.
He sees what we are seeing and we share similar feelings on the matter. He told me to take advantage of the time we do have with her, and keep on doing what we do best.
Afterward, he put his arm around my shoulders and asked me, "Do you want to go home?", to which I replied, "yes".
It is a bitter sweet homecoming....but there's no place like home.
Lucy is not any better than when we brought her through those doors yesterday afternoon. Truth be told, she really isn't going to get any better.
There was nothing too outstanding in Lucy's lab work that indicated to us that there is something treatable going on with our girl. Sadly, what we are seeing in Lucy is as a result of her disease progressing...her body is getting tired.
I could see the love and concern on the faces of so many who know and care for us, who love our girl, as they came by to visit with us today. Lucy is different, but still Lucy, just different. It's so hard to explain, much less try to put into words. But when you see her...you can see exactly what I am unable to describe in words.
The good doc came in this morning to talk to me even thought he wasn't scheduled to be at the hospital today. Lucy cried when she saw him, oddly that made us all feel a little better. He shared with me that this, going through the end of life with our girl, is going to be difficult...confusing...frustrating...painful.
He sees what we are seeing and we share similar feelings on the matter. He told me to take advantage of the time we do have with her, and keep on doing what we do best.
Afterward, he put his arm around my shoulders and asked me, "Do you want to go home?", to which I replied, "yes".
It is a bitter sweet homecoming....but there's no place like home.
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Continuing to pray for God's mercy and compassion on all of you.
This breaks my heart. Praying for strength, wisdom and comfort for all of you.
Praying for strength for you and your family through the difficult journey. Please know that you continue to be in our thoughts every day.
The Mullin Family
Thinking of you all and hope you find comfort in being home.
I will say some prayers that you are able to enjoy some of your time at home. My heart is with you.
I'm so sorry. I hate this disease and how it takes so many of our children. I'm here if you ever need to talk.
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