It was a "Handy Manny" themed party, sort of.
If you didn't already know, our girl, she loves Handy Manny! Jack made for Lucy out of paper all of Manny's tools and tool box. Jack is an origami whiz, he can make just about anything out of paper. Anywhere that Jack goes, the origami is sure to follow:).
Lucy's actual birthday is not until the middle of March, the middle of March feels too far away.
This week has proven to be a really difficult week for our girl. Her pain was out of control on Monday. By Tuesday she was miserable but we could not increase her narcotic medications any more. We believe that the opioid receptors in her brain are saturated and as such cannot absorb any more narcotic medications. She is proving to everyone yet again just how impressive she is, the amount of pain medications that she is taking in is unbelievable! In an effort to give our girl the comfort she so deserves we started her on a continuous infusion of a sedative medication in addition to adding another pain medication that targets different pain receptors in the brain. This combination of meds appears to be working at the moment, and at the moment we are grateful for this.
Our palliative team discussed with Drew and I this week that we are faced with having to decided between a more alert Lucy who experiences pain, and a sedate Lucy who is not experiencing pain. Seriously, there are no easy decisions e-v-e-r! In an effort for Lucy to be more alert for her party, we dialed back a bit on her sedative med so that she could be awake and enjoy the kids and festivities. It worked for a short period of time, but then the pain returned and so too did the continuous infusion of sedative medication.
We sang Happy Birthday for her three times - the traditional way, in Chinese thanks to our friends the Puffs who have been learning Chinese while living in Hong Kong, and the elementary school way complete with cha-cha-cha's. Lucy loved it and even tried to clap her hands after each chorus.
When you ask Lucy how old she is going to be just she just shrugs her shoulders. In my mind she will always be my baby.
I fought back so many tears, the thought of our little girl not being here with us anymore to celebrate any more birthdays, it was too much for me think about.