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One Hundred Days...

May 19, 2014
Drew and I woke this morning with that now all too familiar look in our eyes. The look that says, "I miss her!" One hundred days ago we thanked God for the precious gift of Lucy and then handed her back to him and said, "She's yours, take good care of her!" We reiterated to Lucy in her final moments how very proud we are of her, how she accomplished everything she was sent to this earth...

About the concert...

May 14, 2014
"Music speaks what cannot be expressed soothes the mind and gives it rest heals the heart and makes it whole flows from Heaven to the the soul" Annonymous The evening of May 3rd exceeded our expectations in every way!!!!  This has happened to us a lot recently.  We wonder if our little red-headed blue eyed angel in heaven has anything to do with this :). I want to thank all of...

A Bleeding Heart...

May 12, 2014
For Mother's Day the kids gave me a bleeding heart, we planted it in our garden today. A bleeding heart, how appropriate.   Today was impossibly difficult, not unlike everyday, but more so!   Thank you for your thoughts and prayers, they helped carry me through today. ♥ “Do not judge the bereaved mother. She comes in many forms. She is breathing, but she is dying. She...

Doing the impossible...

May 9, 2014
Mother's Day 2013 Every single time I walk out of my house without multiple bags overflowing with pumps and medical supplies, a list a mile long being checked off in my head before I can even think of backing out of our driveway, and a floppy Lucy with all of her tubes and fluid bags slung over my shoulder to be buckled into her wheelchair...just feels wrong. Going to bed before 1:30 am (Lucy's...

Circulate the Love...

May 8, 2014
Somewhere in this mess of pumps and tubes Lucy is receiving a transfusion of packed red blood cells.  You can see the dark red tubing on the far right pump.   Every six to ten weeks, sometimes sooner sometimes longer depending on her  health status, Lucy required a transfusion of some type of blood product to keep her body going: packed red cells, platelets, plasma... All of it...

Concert Tonight...

May 3, 2014
The Hockessin Music School and the Wind Symphony of Southern NJ Present: A Family Concert  For the Love of Lucy Please join us on Saturday, May 3rd at 6:30 pm  Willowdale Chapel 675 Unionville Road, Kennett Square, PA 19348 Tickets $10 individuals, $25 families.  Make checks payable to: UMDF and write For the Love of Lucy on the memo line.  Credit...