The Fifth Annual UMDF Energy for Life Walkathon...

"Not doing something because it's too hard...well, that wouldn't be honoring Lucy, therefore..." For the Love of Lucy, please join us  Saturday, September 27th, 2014 For the Fifth Annual   United Mitochondiral Disease Foundation  Energy for Life Walkathon - Delaware Valley  At Campbell's Field Stadium   401 Delaware Avenue Camden, NJ 08102 Registration...

Seven Months...

My dearest Lucy Girl, I am in a mood today, not unlike most weekends.  Weekends are the absolute worst for missing you, every day is hard, but weekends are even more so! You died on a Saturday, but you really started "the beginning of the end" of your journey here on this earth on the morning of Friday February 7th.  I relive the last 48 hours or your life every weekend, no matter how much...

Lucy's Story...

It felt so good to be able to share our story, Lucy's story, for the Help our Kids Radiothon at AI today.  We LOVE to talk about Lucy!  We had fun giving live interviews to several of the radio stations broadcasting from the hospital cafeteria this afternoon.  Our kids were given a lot of "air time" and had a beautiful opportunity to share their Lucy stories and what is in their hearts....

Help our Kids Radiothon...

(Totally made them pose this way wearing their raidothon t-shirts...what you can't see is Megan and Sophie laughing their heads off) Nemours A.I. duPont Hospital for Children is hosting it's 4th Annual Help Our Kids Radiothon to benefit the children who are in need of the very best care.  We were invited to share Lucy's story, our family's story, for the radiothon this year.  We...