I have been sitting here staring at the screen wondering how I am going to word this post and even what to title it….
After nearly a year of searching and wondering, we finally have our answer. This is the first time that I have ever written this… Lucy has been diagnosed with mitochondrial disease.
We are feeling all sorts of emotions and need some time to figure things out. I will post more later. Please keep our family in your thoughts and prayers are we begin to grasp what getting this diagnosis means for Lucy and our family.
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My heart hurts for you all, but I am so glad that you have an answer. Hugs to you!
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