Wednesday

It is only Wednesday, wishing it was Friday.  It has been a very LOOOOOOONG week so far. Every night has been filled with commitments and activities.  With three in school this year, we have attended three back to school nights in the last few days, and filled out what seems like three hundred pages of emergency contact forms, reading logs, homework assignments, and PTA forms.  In the last week I was asked from one of Lucy’s social workers if we have considered any plans for Lucy’s future education, to which my eyes bugged out and my jaw dropped.  The answer would be NO, not really, I mean sure we are immersed with school everything right now and I have thought of how much more stressful it will be when and if Lucy goes to school.  But NO, I am just trying to take things one day at a time with her.  I don’t mean to imply that Lucy will not be going to school one day, we hope very much that she will, but I don’t remember having any plans yet for any of our kids future education when they were Lucy’s age. 

If I sound overwhelmed, I am.  We have our hands full right now adjusting to all of the new changes in our routine.  I know things will get easier with time, but right now we are feeling overwhelmed.  Now that we have had some time to process the events from Monday,  again we are reminded  how very fragile Lucy really is.  As if we needed a reminder, never take things for granted!   I think that we are going through the process of adjusting to Lucy’s diagnosis still.  We wonder if and when things will ever get easier?

Tomorrow Lucy has her eighteen month check-up as well as an appointment with her neurologist.  We have several issues that we want to discuss with her doctors and are hoping to get some answers and direction with things.  

The kids also start our marathon of music classes again tomorrow, they are all looking forward to it.  Lucy started her music class on Tuesday, and lets just say it did not go as well as I had hoped.  In her defense, we were recovering from a rough day the day before.  Regardless, I fear that her issues would have been the same.  Lucy has sensory processing issues that are challenging to say the least.   Add to that all of her other issues, and well it’s going to take some time to get her used to the class.

Life goes on…no matter what we will get through all of this!  After all,  it is our life!  Thanks for following us on this journey. 

P.S .I will post new pics soon, I promise.