This is why I haven’t had time to blog…

May has been a busy month for appointments, activities, meetings, and random things that don’t normally occur on our calendar but have this month for one reason or another.  We have had A LOT of appointments recently, so many that I made the decision to cancel one of them this week.  We were scheduled to meet with a new GI who has some experience with mito, but after thinking about it, Drew...

Still here…

I will update soon, but I just wanted to let you all know that we are still here.. just been a little busy.  Lucy has had some productive appointments recently, and I want to share some of the details of those soon.  For now I am off to dreamland…that is until Lucy wakes me up. ...

Music, a family affair…

We had our marathon of end of the year music classes last week.  Lucy’s family music class was on Tuesday night.  Seeing how far she has come since September is simply…amazing!  I wanted to pick her up on the first day and cry right along with her… it was so obvious to me on that day how very “different” she is from her siblings and the other kids her age. We stuck with it, and I am...

Wise Guy….

We were hurriedly loading our kids into our van tonight in an effort to avoid getting poured on by the immanent storm (who am I kidding, there is not such thing as hurriedly loading our kids into our van:), when I noticed the time.  We took the kiddos to a concert at their school, and then out for dinner at a local pizza shop.  It was already 8:47 pm!   Late, but recently not too...

Catch Up…

That is what I have been doing most of the day since I took the weekend off…o.k., more like took a mini vacation from doing any house work.  Oh well, it was fun while it lasted.  I will also attempt to try and catch you up on some of the medical things that have been going on around here… Lucy is recovering from her drop in glucose; however, she has been sleeping A LOT (20+ hr/day) since...

Happy Mother’s Day!

I just wanted to send a shout out to all my mothering friends and family and wish you all a Happy Mother’s Day!   I spent my day doing what I do best…being a wife and mommy to five of the most inspirational, emotional, creative, demanding, adorable, fatiguing, motivating, and loving people in my life....

Surprise!

Do you remember, all you faithful blog readers, way back in December when Drew surprised me with a blog makeover for Christmas.  He even posted on our blog to let me know about his present to me.  I know what your thinking…sorry ladies he’s mine:)  I had been admiring other people’s blog designs for quite some time, and would often comment on how I liked this or that person’s design. ...

Oh,What A Day!

(I wrote this late last night and am just now getting to posting this.) I woke this morning feeling a bit panicky.  You see, Lucy slept through the night last night, for the first time in…well, I can’t even remember when.  Drew and I were getting the kids ready for school when I told him I was worried since I did not hear from or see our little night owl since she went to bed at 10:30pm...