Monday, April 25, 2011

A Good Morning…

We are waking to a baby who has her eyes open, laying in her crib, looking very comfortable and at peace.  She is SO MUCH more aware this morning than I have seen her in over a week!!  Sometime during the night her nasal cannula came untapped from her cheek, we watched as her O2 sats stayed in the mid nineties and decided to leave it off.  She has been breathing on her own ever since.

Last night we continued having a difficult time controlling Lucy’s pain, the PICU attending came in and assessed Lucy’s pain at the start of his shift, then about an hour later all h**l broke loose as she was in so much pain that she wanted to crawl out of her own body.  Dr. S came back and agreed that she needed to go up on her dosing, he increased her dosing by 30% and moved up her PRN(per requested need) dosing to every two hours vs. every four.   I think that we finally have her pain under control, which is good since she is maxed out on her dosing for dialaudid.  That’s not to say she has not had a few break through moments, but it is SO MUCH BETTER than it has been!!!  We also believe that she has a paradoxical reaction to the drug Nubian, we are discontinuing that med for her.

Lucy’s labs are looking better in some areas and not in others.  Her liver numbers are still elevated but are improving.  Her triglycerides are in the hundreds not thousands, huge improvement.  Today we were actually able to get all of her lab values, unlike the past week.  Her blood counts are dropping, she will be getting a platelet transfusion sometime this morning as her counts took a big hit overnight., followed by a round of Lasix.   Her albumin, the amount of protein in her blood, dropped again so she will be receiving an infusion of albumin as well.  Giving her extra protein should help to draw off some of the excess fluid that she has all over her body as well.

8 comments:

Anne Kerr Thomas said...

Improvement is great!! I'm still praying!! miss you guys! Keep up the good work Lucy Goosey!! Love ya!!

Anne

Ang said...

I have been checking in daily for any improvement, I am so happy to see some! Still praying hard for your family.

Carey said...

Sounds like a positive change! So glad to hear this!

megan said...

Ahhhh! Thank goodness! Thinking of you guys everyday! A million times a day! Come on Lucy, Cinderella is waiting!

Debbie said...

great news hearing about the improvements! Will keep the prayers coming!

Heather said...

Awww, so glad to hear you have a happy and awake Lucy! Hope she continues to feel better!

Heather

Carrie in SM, CA said...

I'm so happy to hear that things are improving for Lucy! My thoughts and prayers will continue to be with you all.

-Carrie

Heidi said...

This update has made my day! So happy to see she is improving some, an awake baby is the best news ever!
My Dad is also on the same pain med, it brings him a lot of relief. Continuing prayers, hugs to your precious girl <3