Homeward Bound…

Lucy’s cultures have not grown any new bugs for the last 48 hours, which means that we can make arrangements to go home!  We do not need to pull and replace her line because her cultures in the last two days are negative for any of the bacteria.  We are going home on a 14 day course of IV antibiotics.  The susceptibilities came back and Dr. R was able to find ONE antibiotic that will...

More bugs…

We learned today that Lucy’s line culture from Tuesday grew gram positive rods.  Dr. R said that these bugs most likely translocated from her bowels as well, because of the type of gram positive bacteria that grew.  We are keeping her on the Vancomycin, the antibiotic we are using to treat the gram positive bacteria, until the susceptibilities come back.  Lucy has a reaction to Vanco...

A Day in Our Life…

Just a glimpse of our time here… A set up like this, commands respect. Bye-bye!...

Details…

We had a relatively uneventful night, which was just fine with me after the day that we had.  Dr. R came in this morning and talked to me about the bugs growing in Lucy’s line.  What we saw happen to Lucy yesterday was gram negative sepsis, very scary!  When we started pushing antibiotics through her line it caused the bacteria in the line to spread throughout her blood system, thus...

9:00 Update

After only eight hours, cultures have come back growing gram negative rods, which means a line infection.  It must be a pretty potent infection, if after only eight hours we have positive cultures.  We are still waiting to learn what if anything else grows, typically you need to wait another 24 to 48 hours. Lucy is on two different IV antibiotics, one to cover gram negative bacteria and...

3:00 Update

It has been a difficult day… to say the least.  We arrived in the ER at around 9:00 with the knowledge that we were getting admitted.  I had a feeling that Lucy was getting a fever when I put her to bed last night, higher than normal heart rates clued me in, so at midnight I stated the process of doing laundry and packing.  We woke this morning at 5:30 to run an IV infusion, and have...

Good Morning…or Not

We were woken up early this morning to high heart rate alarms and a girly with a 102.2 fever.  We are getting things organized and heading to the DuPont ER to be admitted.  We’ll update when we know more....

TGIF…or Not

We have yet to go a week since April of 2009 without having a medical appointment, or two, or more, or an urgent need of some sort in which we had to go to the hospital.  We almost made it a week this week, when suddenly things changed.  Lucy’s central line broke when an accidental trip on the line caused the line to snap! Things became very urgent this afternoon when this happened! Within...

Here…

Believe it our not we are still here… just have not been here, on this blog all that much, for all sorts of reasons….and I miss it.  Writing on here is very much a sort of therapy for me, it helps me to organize my thoughts, clarify some of the everyday and not so everyday experiences of our crazy and very fulfilling life,  and share and document our journey…our lives…for us and you too. ...

Happiness is…

Seeing my husband so happy! Why is my husband so happy? Because… he was able to see his beloved Packers play the Eagles in the wildcard playoff game today…and the Packers WON!!!!  Today would not have been possible had it not been for the kindness and thoughtfulness of friends, and our wonderful nurse Helen. Thank you! For a short time Drew and I were able to forget about all of the “stuff”...

And Happy New Year…

Good-bye 2010… hello 2011! Here’s to a new year, may it be filled with hope and peace!...

Merry Christmas…

Before… After… From our house (hopefully, yours is a little bit cleaner than ours) to yours, Merry Christmas!...