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Our week in pictures...

November 24, 2012
This is pretty much what the past week has been like for our girl....
Monday...
Tuesday...
Wednesday...
Thursday....
Today...
 I realize she is wearing the same pair of pajamas in every photo.  Pick your battles, right!   We made her good and mad tonight and changed her into clean pajamas, socks, and even changed her diaper.  Yep you read correctly, we changed her diaper for the first time in I don't know how long not because it was dirty but just because, there's the benefit of having a Foley catheter and no bowel motility.

Lucy is one irritable girl, some might say that is the understatement of the year.  Fevers are down, but her pain is not.  Cultures are still negative, her viral panel was negative too.  Lucy girl, nothing about your life has been easy, but we love you none the less.
We continue to pray for answers, and comfort for our little one.
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Reagan Leigh said...

I so know where you're coming from! When Reagan hits a bad streak everything is a struggle and sometimes it's just easier to skip the bath or clothes change! Lucy is just precious though and I think about you guys often! Praying she feels better soon!

Helen A said...

Lucy, Your picture from Thursday is breaking my heart. Rest up and hopefully some answers and and help will come to make you feel better.
Love and hugs,
Helen

Anne Kerr Thomas said...

aww poor sweet lucy, i hope you feel better soon and get home to play with the kids. miss you guys and i hope you get discharged from hotel dupont soon. <3