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Atlanta Day 2

May 21, 2009

We had a very informative day full of appointments.  I do not have time right now to go into detail about our appointment with Dr. Schoffner, but I will say that he was able to make sense of everything in Lucy’s medical history!  He is the first doctor that has been able to do this for us.  I will also say that he lived up to his reputation of being well prepared for our appointment and knew Lucy’s medical history like he lived it.  When our appointment was over, we left there feeling even better about our decision to travel all the way down here to have her biopsy preformed.  I’ve said this before, Drew and I have second guessed many of Lucy’s medical procedures,  in part because we have not been able to get many answers to her problems and also because it is overwhelming at times!

I am short on time, so I will post a picture diary of some of our events today.   We had a few minutes in between our appointments to play in the playroom at the RMDH.  Notice Lucy’s sweaty head, the weather here is cool but she seems to be having temperature regulation issues again.

March 31, 2009 to May 20, 2009 212 As promised to you Alicia, here is a picture of Lucy during the resting metabolic rate test.  She did well for the first 2 minutes and thirty seconds, but not the remaining 7 minutes and thirty seconds.

March 31, 2009 to May 20, 2009 174

March 31, 2009 to May 20, 2009 178

After a comforting nursing session, she had an EKG preformed.

March 31, 2009 to May 20, 2009 182 We took a tour of the hospital after dinner last night and found ourselves some strange looking doggies and a happy turtle.  Notice Lucy’s club hand,  we cover up her I.V. so that she wouldn’t mess with it.  Even so, she was able to finagle her way out of this one and pull her I.V. out.  She is notorious for doing this.

March 31, 2009 to May 20, 2009 224

March 31, 2009 to May 20, 2009 236 I has been a while since I have slept in a crib, but that is where Lucy and I slept last night.  It was surprisingly comfortable.

March 31, 2009 to May 20, 2009 240

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amber said...

I am so glad that you had a productive appt with Dr. Shoffner. I knew you wouldn't regret traveling to see him. I am anxious to hear about your appt with him.

I am praying that the muscle biopsy goes well and that you have a safe trip home.

Alicia said...

Thank you for the pictures! Can't wait to talk to you. Give me a ring when you have some down time.