Sunday, September 25, 2011

So far still positive…

By positive, I mean Lucy’s cultures.  We are continuing with the current antibiotics because in theory they should be able to kill the bacteria identified in her line.  Of course with Lucy, everyone knows that she likes to take the road less traveled.  Despite this quality about our daughter, I too am going to remain positive that we are on the right track. 

Lucy continues to remain stable.  Her labs look “ok”, with the expectation of her usual awful lab values.  She looks puffy, but then again that seems to be more her norm as of the last six months.  Her albumin levels were critically low, so this afternoon an infusion of albumin was ordered.  Here’s hoping that with the extra protein on board that we can pull off some of the excess fluid in our girl.  The albumin combined with a very high does of lasix should help to make a difference…that is if Lucy’s body chooses to respond.

Drew and the kids were here this afternoon.  I took the big kids out for lunch while Drew and Lucy spent some quality time together.  After lunch we ran a few errands and then came back to to the hospital where our friend Alicia came and picked up the big kids and took them back to her house so that Drew and I could spend some time together..foreign concept these days.  We were able to watch the Packer game together all the while talking about how we are going to schedule the next few days.  

We still have our eyes set on sunny skies, ocean waves, and sand in between our toes…here’s hoping we are out of here soon so that we can make this a reality. 

Thanks for all of your thoughts and prayers, love and support, we could not do this alone.   

PS  I found my camera cord and will post pictures again soon… in case you were wondering where our kids have gone .

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