Merry Christmas to all…

and to all a good night!...

A quick update…

So far cultures are still negative, we would be very surprised if that changes. Lucy’s urine culture did come back with bacteria that she has grown before. We believe that her bladder is most likely colonized with the bacteria, we are not really surprised since she has a neurogenic bladder and is cathed several times a day, everyday. We believe that Lucy experienced a very rare side effect,...

No news…

I have not heard from the hospital or our main doc, which means that cultures have not grow anything as of yet, that’s good.  The cardiologist on call last night confirmed, based on the EKG they did in the ED ,that Lucy is experiencing sinus tachycardia.  We’re not at all surprised with this finding, but what we are wondering is what is causing it.  The fear is that it could become...

Twas a week before Christmas…

And all through our house sounds of Lucy’s heart rate monitor are alarming us all!  We are currently sitting in the ED getting labs and cultures drawn.  Lucy’s heart rates are high >170bpm, she is sitting right at the cutoff for what we consider a fever, and she looks like a little tomato.  On the plus side, she is not really acting “sick”…yet.  We spoke with our main doc,...

The Readers Digest version…

Sad but true, I don’t have enough time during the day to sit down and write a blog post from start to finish.  I very often begin posts only to find that days later they remain incomplete.  By the time I sit down to finish writing, I am often too tired to complete a thought much less write one down.  My lack of blogging is certainly not because of a lack of things to blog about…quite...

Baby has a brand new set of wheels…

Lucy’s new wheelchair is here!  She has outgrown her old chair both in size and medical need.  Her new chair is bigger, heavier, more comfortable for her (not quite as comfortable for me to push), can support the weight of all of her medical equipment, has an IV pole, is pink, and has her name embroidered in pink letters on her seat to match her chair.  This is just a little something...