Times have been tough for our little one, I believe that is the easiest way to sum things up. This afternoon Lucy was taken to the hospital via ambulance for cluster seizures lasting longer than ten minutes. These continued for the duration of our ride over here. For those of you who have ever had a child or seen a child seize, a second feels like an hour, a minute a year, and well ten minutes an eternity. Like I mentioned in pervious posts, seizures are not something new for Lucy, but the frequency and duration of these seizures are new for our girl. She has been even more irritable and agitated the past few weeks but especially the past few days. We started Lucy on phenobarbital on Saturday and methadone yesterday. Is it med related, surly we are suspicious, we don’t really know yet. There are too many things happening at once, as usual, to say what it is that is causing this. For now she is sleeping, seizing like she did is extremely fatiguing, and when she is awake she is irritable. I will update when we know more.
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Oh Nicole.... I am so sorry..
Praying for dear sweet Lucy, for you & for your family as a whole! Please let me know if there is anything you want, need or desire! You are so very loved Lucy!
Lucy, rest little one so you can get home and play. You are like one big puzzle, hopefully you can help the doctors solve this puzzle, since you are such a puzzle expert. I am thinking of all of you. XOXO to you!
Helen
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