Our goal for Lucy has always been to give her the best longest life. This goal has helped guide us through the toughest of times.
Today very difficult conversations were had about whether or not we could fix Lucy...and if we should fix Lucy.
Drew and I believe that in order to give Lucy any hope of "getting better" and improving her current quality of life we need to move forward with the cholecystectomy and cleaning out of her bile duct. Just how and when this is going to be done is the question.
As difficult as all of this has been, we have been overwhelmed with the love and support from all of those who know and love our girl here at hospital. God has blessed us with the most wonderful people in our life, for that we are so thankful!
Lucy continues to be so very very sick, please keep praying. We increased her fluids today in an effort to flush the excess calcium out of her body, her levels have continued to rise. Her renal function has continued to decline which makes every change we make to her fluids and meds even more difficult.
I was able to spend some time with the birthday boy and the girls tonight. Celebrating life...isn't that what living is all about!