Change of Plans...

(This picture was taken the morning of Mother's Day, it's not everyday that we get a picture of all four of them, all in the pj's:) Home sweet home!  After a difficult and emotional week, we came home late Friday night.  After several emotional discussions, we are postponing Lucy's stent removal for a few more weeks.  When this was decided, we quickly made plans to come home.  Lucy...

Our Life...

On Tuesday I coordinated a pick up and drop off schedule that makes international travel seem easy.  Despite having a daughter who is laying in a hospital bed fighting for her life every day, life continues to go on around us.  It just dose, and some days, well... it just hurts that it does. I have yet to figure out how to be in two, three, or even better four places at once.  When...

Mama, I awake...

Look who's been awake a little more, not a lot more, but a little more.  If you want to see those baby blues open, you had better come and see them right when they open because they are quick to close and stay closed for hours. When she has been awake she is a bit of a craby pants, not unlike her pajamas, but who can blame her. Tomorrow we are going to take a trip down to IR (interventional...

Sleeping Beauty...

This picture pretty much sums up our day.   Lucy was only awake for brief periods of time today.  I have to keep reminding myself that she is healing, and that takes time.  Our pain management plan had some glitches which means we are working on it.  Her incision site looks good, we removed the dressing and replaced it with a clean one.  Today was also spa day in Lucy's...

E-Cards...

Back by popular demand here is the link to send Lucy an e-card. Lucy's room number is 3407 3707. We love hearing from you, your thoughts and prayers, love and support mean so muc...

An almost quiet Sunday...

Lucy is about the same as yesterday - translation, she is stable, stable is good.  I wrote these words in an  e-mail earlier this afternoon. Lucy has some healing to do and as such her body is tired, she slept comfortably for the most part today.  However, she did wake up bright and early this morning so that she could play.  One of her favorite nurses worked with us last night...

Today...

After a rough night, I'm happy to report that our day was much better.  Lucy is comfortable, which is amazing, considering the amount of holes in her belly.  She slept a lot today, but when she was awake she was pleasant.  Lucy has an On-Q Post-Op Pain Relief System strategically located near her largest incision site which is delivering a local anesthetic, I love that they...

Sleeping Soundly...

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Some details about today...

Lucy is doing what Lucy does best, she is keeping everyone on their toes.  She is in pain, has a fever, and is down right irritable!  She is where she needs to be at the moment, her care is being managed by the PICU nurses and docs. For me to say this is means that we really DO need to be here, we try and avoid the PICU at all costs.  It's nothing personal with the unit, it's...

Quickly...

I want to quickly update all of you.   They are just wrapping up at 6:00 pm.  Things did not go as smoothly as we would have liked, but a drain tube was placed in her gallbladder.  We are not sure if this is going to work, but for now the stent is still in place so things will continue to drain as long as it's there.  Things were more difficult than expected and as such we are...

A few things...

Lucy's gallbladder is shredding as they are trying to suture it to the skins surface, this was something that we were afraid of.  They are going to do a dye study to see where things are flowing. If they can't get it to adhere to the skin's surface then we may have to close her up and reassess.  Drew and I are sitting in the shade outside the PACU by the fountain, praying, worrying, reminding...

4:17 PM

Dr. K was successful in laparoscopically locating the gallbladder and is in the process of placing a 28fr Malecot catheter in her gallbladder.   We were told that Lucy is behaving, Dr. R will be so proud of her, she is actually following his orders :). ...

Here we go...

At 2:46 pm we kissed Lucy good night and said we would meet her at the ice cream truck in her dreams, she has dreams of eating 100 scoops of " only anila"(only vanilla!) ice cream. I will update when we know more...

Running Late...

The OR is running a little behind, it's 1:45 pm and we have yet to go downstairs. Lucy had an EKG and echo this morning to rule out any cardiac issues, she has been having episodes of super ventricular tachycardia that appear to have resolved since monitoring her more closely :).  All was good, which makes us all happy especially anesthesia. I will update when we know more... Thanks for your...

Anatomy of My Sister...

By : Sophie Marlett When Sophie was finished with her drawing, she came to me and asked,  " Now Mom, where's her new tube going to go?". ...

Decisions, Decisions...

Last week we met with our surgeon to discuss our options for Lucy.  To say we were more than a little nervous about having this discussion, a discussion in which we were faced with having to make a decision on which way we were going to take Lucy's life, would be stating the obvious.  As I outlined in a previous post, we are faced with some really tough choices, having to choose between...

Give Blood...

Not just for our girl but for the many others who need your help too, thank you! For the Love of Lucy Blood Drive Thursday, May 9th 2013 3PM-8PM Please visit:   http://www.redcrossblood.org/make-donation and search by sponsor code 02215121 to schedule an appointment. Please contact tedra.farrell@redcross.org if you experience issues...

Really Tough Decisions...

I want to say a heart felt thank you to those of you who continue to check on, think of, pray for, and love all of the Marletts.  We value and appreciate all of the love and support, and thoughts and prayers that are given to our family.  I am continually in awe of people!  Despite what the media portrays, people are good, they genuinely care!  They are loving and want to lend...