Ever feel like this...

Happy Halloween from a yo-yo, an angel, Little Red Riding Hood, and a little mermaid not to be confused with The Little Mermaid (pictures soon to follow, just as soon as I actually take some :) Pumpkin courtesy of Drew, the master carver and creator of all things jack-o-lantern in our hous...

Still here...

The past few weeks have been a blur... Today we're spending the day at the hospital filling Lucy's tank with some blood product.  Blood transfusions take a l-o-n-g time! Once the blood actually hangs I know we have about four hours to go.  Before that it can take hours to get her type and screen back and have the blood bank process the blood.  I'm not complaining, just sharing...

It's In...

Our surgeon was running behind today,  Lucy waited patiently for him, and then fell asleep. Lucy is the proud owner (whether she likes it our not) of a brand spanking new 7fr double lumen central venous catheter placed in her left subclavain vein.  In other words, she has a brand new line coming out of the left upper quadrant of her chest with two points of access.  Our...

Location, Location, Location...

Everyone knows the most important rule in real estate.... location,  location, location!  Our main doc and I agree, we don't like the current location of Lucy's temporary line.  Our surgeon is not necessarily in agreement but is going to move the line back to her chest, aka prime real estate.  Cultures have remained negative in both her blood and her urine...

A pretty boring day..

When I woke this morning I saw an email from the good doc that read "Stopped by early everyone asleep.  Will touch base later today.  Otherwise pretty boring day."  I thanked him for letting us sleep in (sad but true, I get more sleep in the hospital than at home) and told him that we were looking forward to a pretty boring day. Our room was dark, quiet, and dare I say peaceful despite...

Settling in...

Seconds feel like minutes, and minutes feel like hours just ask any parent who is waiting for their child to come out of surgery.  Whenever Lucy is under anaesthesia for any procedure I look at my watch at least a million times.   When all was said and done two hours had gone by and lots of new tubes had been placed inside our little one's body.  Her chest is line free at the moment...

We just can't seem to stay away...

We are packing up and heading to DuPont today.  On Sunday just as we were getting ready to leave for an event at our favorite place, Longwood Gardens, we discovered that Lucy's gallbladder tube had come out and was literally hanging on by a thread.  This prompted a quick email to the good doc in which I simply said, "Now what?".  There has been some debate as to whether or not we should...