Who stole a cookie from the cookie jar?

This morning I was putting Lucy down for her nap when Sophie yelled up the stairs to me,"Mommy, I'm still hungry for a little more food. " Mind you she just finished eating breakfast about fifteen minutes earlier. I chose not to respond to her as I was in the rocking chair nursing Lucy to sleep. After laying Lucy down for her nap, putting another load of laundry in the machines, and getting dressed,...

Merry Christmas to all and to all a good night's sleep!

What a whirlwind of a week we have had! Last week at this time I was running on adrenalin, shopping, cleaning, wrapping, organizing, scheduling, cooking....Merry Christmas to all and to all a good nights sleep! This morning I slept in until 10:30, of course not without waking every four hours, feeling more tired than ever! I was only able to do this because Drew took off this week for a vacation...

Reiminded

This morning I am reminded more than ever to take the time and really enjoy the holidays, you never know what can happen! A family that we met on one of our hospital stays has a very sick child who is battling so much this season, as their son has once again been admitted to the hospital. Please say a pray or send some positive thoughts to this family as they need, more than anyone I know this season,...

A "Sophieism"

The other morning when I was working on the computer Sophie was playing next to me on the floor dressing her Barbies. She was busy with this activity when she came out with this one...

Sophie: "Mommy, mommy, mommy,mommy..."

Me: "Yes Sophie...."

Sophie: "Mommy do you know what they make dresses with?"

Me: "What?"

Sophie: "Wands!

Me: "Wands?"

Sophie: "You know, magic wands!"

TGIF

Yeah, we made it to Friday! This week more, than any other week recently, has been the most exhausting week for us a parents. I'd like to say that I have been busy helping the elfs in the North Pole, or cleaning my house in anticipation of company coming, or even going out to lunch with girlfriends to celebrate the season, sadly I have done none of the above this week. My week started off with Lucy's...

The Plan

Yesterday, I received a call from the metabolism group at CHOP in regards to a meeting that they had about Lucy. Once a week the metabolism group has a meeting with all specialists who are involved in diagnosing, testing, and treating metabolic disorders. Lucy was on their agenda. We apparently need to "feel good" that they discussed Lucy's situation, because now we have so many more metabolic experts...

What are we waiting for?

This week we are in the hurry up and wait mode. We are waiting to hear from Lucy's metabolic doctor on what the next steps will be. The last few weeks, including this week have been filled with doctor appointment after doctor appointment. In fact, I don't think that we have had a week since the the middle of October where we haven't had a doctor appointment or two, or three, or four... We have seen...

Just Jack

So when I started our blog I titled it All The Marletts because my intention was to blog about our family and all that is going on in our world. Well a lot of what's been going on in our world has been Lucy's medical situation, but that is just a part of our life. We have three other kids who medically are not as concerning, but are just as important in our world! Jack has on MANY occasions pointed...

A Nutritionist who eats chocolate!

Yesterday, we had our first appointment with the GI nutritionist at CHOP. I'm just going to come out and say it, we loved her! It was so nice to have someone so normal, a nutritionist who eats chocolate, in the CHOP medical system discuss something so abnormal with us! This nutritionist has a child who also needed supplemental nutrition as a baby, so she has personal experience as well as professional....

What is it?

Today we had our "big" appointment with the CHOP endocrinologist who specializes in metabolic diseases. I would just like to state for the record that his big ego was no where to be found. He was very professional with an appropriate level of compassion for what Lucy, Drew, and I have been through recently. He too was not sent any of Lucy's information prior to our coming, despite our metabolic doctor...

A long overdue update

Sorry that it has been over a week since I last posted anything, we have been a little busy here you know with Christmas coming and all. Last week, my mom came to help us "catch up" on everything from laundry to work hours for Drew. Although she was not able to help us catch up on sleep, she made our waking hours easier on our tired bodies. I commented before in a previous post on how a baby just...