Splishing and Splashing

We had a nice warm Memorial Day weekend where we spent most of our time outside!  We had a pizza party with friends of ours on Sunday night and then went over to Longwood Gardens to watch a fireworks show.  We waited and waited and waited for the show to start, finally at ten minutes to ten they began and so did the rain.  It poured on us and the hundreds of other people that were there. ...

We’re Home

It feels so good to be home, I missed our three other kiddos so much and was so glad to see them!  I also missed sleeping in my own bed, but even more I missed having Lucy sleep in her own crib!  Our drive back was relatively easy as Lucy slept off and on for most of the fifteen hours.  As for Drew and I, it was nice to have the uninterrupted time  in the car to talk about the...

Atlanta Day 3

  Our day truly began at midnight when we had to shut off Lucy’s feeding pump and switch her over to an IV of D-10 solution, her sugar of choice.  This is when we noticed that our little Houdini managed to pull out another IV , in her sleep mind you!  This is not the first IV that she has managed to pull, she kind of has a reputation for doing this.  Another one was placed...

Atlanta Day 2

We had a very informative day full of appointments.  I do not have time right now to go into detail about our appointment with Dr. Schoffner, but I will say that he was able to make sense of everything in Lucy’s medical history!  He is the first doctor that has been able to do this for us.  I will also say that he lived up to his reputation of being well prepared for our appointment...

Atlanta Day 1

We arrived here in Atlanta around 7:00pm today.  All told it took us about fifteen hours with stops here and there to get a bite to eat, nurse Lucy, pick up a few forgotten supplies at a Target, and to get jolt of caffeine at a Starbucks along the way.  We left our house last night at around 7:00pm (after discussing last minute lab results with our CHOP doctors – more info later on this)...

Details

Happy Mother’s day to all our moms and mom friends!  I hope you were able to enjoy all that motherhood has to offer.  As for my mother’s day, I spent most of the day practicing  a great rendition of “Oh When the Saints” on the  keyboard with Jack for his recital on Monday.  Sitting with him was an obvious reminder of what it is to be a mom!   For the rest of my life...

Who doesn’t have issues?

Agh, where did the week go?  It can’t already be Friday?  Now, I’m in no way complaining about it being Friday, it’s just that I thought I had all week to get to my mail, and mop the floor, fold the laundry, and sort the kids clothes …. Now it’s Friday afternoon and I’m sitting here typing this post with the mop literally right next to me, the washer and dryer going at full tilt, the mail...

Happy Thoughts….

I realized recently that many of my posts have been not so happy and full of hope.  All of this medical stuff can really suck the life out of you!  It can happen even to the best of us, so I am dedicating today’s post to happy thoughts!   This weekend Drew and I  had the opportunity to go out to dinner ALONE!  Yes, you read correctly, we went out to dinner on Friday night...

More Stuff…

Hooray for Saturday!  It has been a crazy week for our family!  Lucy had appointments every other day last week and the four kids had activities on the days that we had no medical appointments.  I am mentally drained from our week of appointments.  Not sure what to make of all of them, it appears that every one of Lucy’s doctors are just as baffled as we are.  I feel like...

Everything you never needed to know but want to…

Our never ending cycle of appointments just keeps going and going and going… I have lost count of how many we have had this month, but this week alone we will have had three. I have been vey behind in my updates only because I have not had much time blog recently and because I managed to infect our new computer with a very nasty spy ware virus. I just want to say a HUGE THANKS to our friend Paul...