Top Social

It’s October!

October 6, 2009


Please tell me I’m not the only one who is surprised by this.   This week is the start of our marathon of appointments and procedures.  If you ask me what I have to do this week  or even tomorrow, I don’t think that I could tell you without looking at my calendar.  This morning I took a look at what was on our agenda and by the afternoon I had already forgotten that we had therapy at 3:45 pm.  We quickly pushed the toys over and made room for therapy.  I think this is a sign that we have either too much going on, or maybe I need to take whatever that supplement is that people take to improve their memory.  If only I can remember what that’s called. 

Drew and I were able to go out to dinner alone on Saturday night!  How you ask did we manage that?  Thanks to our friends Beth and Andy, we took turns watching each others kids this weekend so that we could each have a night out.   Even better than that, Beth convinced, or more like lectured me into leaving Lucy with them.  Beth can be  forcefully convincing when she needs to be, so I agreed to leave Lucy too.   She did amazing and so did Lucy:)!  We were ALL surprised with Lucy’s behavior, the kids even commented on how well behaved Lucy was.  Hopefully, we can do this again soon.

Recently we have been blessed with several offers of help and support for our family.  We are overwhelmed ,in a good way, by the generosity of  the  people who have offered to help our family.  It is not always easy accepting help, we feel that we should be able to do it all, but we are learning to allow others to help us in a time of need.  Our schedules are overflowing right now and it is nice to know that we have a little extra help on the days when we are bombarded with medical stuff.  Thank you!

Just wanted to share with you an opportunity to support the UMDF. 

Help Support the UMDF by Shopping at Macy's on Saturday, October 17th.
Purchase a Shopping Pass Here:

Help the United Mitochondrial Disease Foundation by participating in Macy's Nationwide Shop For A Cause event on Saturday, October 17th 2009.
With your shopping pass you can:  

  • Jump start your holiday shopping
  • Purchase birthday gifts in advance
  • Treat yourself!
  • How It Works:

  • Log onto and purchase a $5.00 shopping pass.
    Shop For A Cause gives YOU the opportunity to help the UMDF by purchasing a $5 shopping pass for exclusive savings and special offers in every Macy’s store on Saturday, October 17th. This exclusive shopping pass includes 20% or 10% off most purchases all day long and 25% off a single purchase in women's, men's or kids apparel or accessories. Some exclusions apply.
    As a participating charity we keep 100% of the proceeds from the sale of each pass. Plus, you can enter to win a $500 Macy’s Gift Card!

    This exclusive shopping pass can be redeemed at any Macy's on Saturday,October 17th.(The downtown stores in Pittsburgh, St. Paul, Minneapolis, Boston, St. Louis, Miami and Gainesville, FL, will hold their events on Friday, October 16).
    By purchasing a shopping pass to the event you can support UMDF while enjoying a day of spectacular discounts, entertainment and special events.
    Deadline to register is Monday, October 12th. We will mail your tickets to you.
    For more information please contact

  • Post Comment
    Amber Greenawalt said...

    Hi my name is Amber. I found your blog in one of my "mitochondrial disease" googles. I think we might be leading somewhat parallel lives ;) If you would like to check out our blog you can visit us at Our youngest Savannah was diagnosed last month (through Dr. Shoffner!) with Complex I and Complex III...Recently I have been posting about Disney but if you go back I've posted a good bit about mito.