Hear Ye, Hear Ye

Yesterday I took Lucy to DuPont for a follow up hearing test.  Last April I brought her there for her first hearing evaluation, at that time she was very delayed in her speech and not really making any sounds or attempts at communicating.  Knowing then that we were going down the mito diagnosis road, and that one of the symptoms of mitochondrial disease is hearing loss, we thought it...

A Little of This and a Little of That

Yikes, I realized I haven’t been the most diligent blogger recently.  There’s nothing like not posting to have people lose interest in your blog, or maybe it keeps people wondering…yeah I like that thought better.  I know I owe you some posts about our trip to Disney and I will set out soon to finish up what I started writing on that waaaaaaaaay back in December.  Can you believe that...

Who says you can’t cry over spilt milk?

Picture this…one very tired baby who was long overdue for her afternoon nap, one exhausted mommy who had just returned home at 1:00pm from a morning of running around the tri state area, and one very hungry four year old who wanted mommy to make the Japanese noodles for her lunch that we bought while at the Asian market on one of our many errands this morning. My day started off during the...

Good Night Lucy Goosey

I thought I’d share something cute and funny with you tonight, since I left you yesterday with such a informative post.  Me:  “Kids come and say good night to Lucy, she’s  going down.” (We often use this terminology to describe putting Lucy to bed, it reminds us of something a sports team would say to their opponents just before the big game.  Putting Lucy to sleep is like...

Good Days but Not Really Good Nights

I read recently, on another mom’s blog, that when you have a medically complex child  it’s difficult to simply answer the question, “How’s it going?”.  I can totally relate to that.  There is really no easy answer to that question.  It all depends on the day, or rather the moment.  I don’t intend  to mislead anyone when I answer with a simple one word answer, but I don’t...

A Bit of Trivia

You know how there are those people whose job it is to calculate all sorts of ridiculous trivia  facts in the world, like how many hours of your life you spend sleeping.  Do you think that those same people take into consideration the number of kids a person has or whether or not  any of those kids have a sleeping problem?   Just asking, I think that it is entirely possible...

Happy Holidays!

Where have we been…hibernating!  This is unofficially the term we like to use for the week that follows Christmas and takes us into the new year.  We have been catching up on sleep (if that’s even possible) and eating all sorts of yummy foods that can be found this time of year. (Check out the shoes, these are Sophie’s but Lucy loves to wear everyone else's shoes.  Notice how...