Thursday…

I am at the point in this admission where I just want to go home…I have found, for me, that there is that point in every admission where you just want to go home, today I hit that point.  I remember Dr. R telling me last year that you need to take a break from here in order to make it through a longer than a week admission, he has no scientific proof of his theory, just a lot of personal experience. ...

All of our ducks fell out of our row…

We  went down to the OR around 1:30 this afternoon.  The surgeon who pulled Lucy’s infected line and placed Lucy’s temporary femoral line was the infamous Dr. K, who has a reputation for being an amazing surgeon with a great bedside manor.  He also happened to be the one to tell me that there is no way he is going to place a more permanent central line in Lucy on Friday, but he would...

Rosie Cheeks…

On our agenda today was a bath and blood…not a blood  bath, just to be clear.  Lucy was originally scheduled to be transfused in day med today, but since we are currently in-patient we transfused her from the comforts of her hospital crib.  Her skin now has a pinkish glow and her cheeks are rosie red…she looks so warm and beautiful, and she smells good too.  This morning we...

Today…

Today started like many days in the hospital…early!  Lucy has to have labs, labs, and more labs drawn daily for cultures, a CBC, antibiotic levels, and to check her chemistries.  All of this happens somewhere between 3:30 am and 5:50 am…which is early!  I learned from morning rounds that Lucy’s cultures are still positive for the same bacteria, the lumen that was negative yesterday...

So far still positive…

By positive, I mean Lucy’s cultures.  We are continuing with the current antibiotics because in theory they should be able to kill the bacteria identified in her line.  Of course with Lucy, everyone knows that she likes to take the road less traveled.  Despite this quality about our daughter, I too am going to remain positive that we are on the right track.  Lucy continues to...

Admission…

I may not have made it very clear in my last post, positive cultures mean that we absolutely positively have to be admitted…ugh!  I will be the first to admit that when I received word that Lucy’s cultures came back positive I acted like a big baby about having to come in on a Friday night.  I know, not very, mature, but I was not prepared mentally for an admission last night…I was ready...

A Rollercoaster…

Recently we had an opportunity to take all of our kiddos to Hershey Park, a local amusement park, famous for the smell of chocolate in the air and roller coasters, lots of them.  Drew, Jack, and occasionally Megan and Sophie took advantage of as many of the rides as possible, Lucy and I rode the handicap accessible train over and over with the occasional carousel ride thrown in for variety. ...

Less than a week away…

The second annual Energy for Life Walkathon is this Saturday!  We want to thank all of you who have registered to walk, donated, or participated in a “For the Love of Lucy” fundraiser!  Your support, care, compassion, thoughts, prayers, love, friendships, loyalty, and dedication to helping a cause that is so near and dear to our hearts is quite simply…amazing!  We appreciate each and...

Where I last left you…

Least you think we blew away during hurricane Irene, we did not.  We didn’t even loose power for more than a few minutes.  We weathered the storm with minimal damage, thankfully!  Lots of rain and heavy winds caused some flooding and streets to be covered in debris, as a result the first day of school had to be delayed by one day.  After some disappointment, we embraced the extra...