Today...

Today was much better than yesterday, so very thankful for that.

Sleep is scarce for me these days, I am looking forward to getting some tonight.

Praise God for antibiotics,  they are lifesaving!  Infectious disease has officially been added to our team of specialists, we are in a difficult spot when it comes to all of the bacteria and yeast Lucy has growing in her body.  We are looking to the experts for guidance and suggestions for keeping the bad bugs away for as long as possible.  Like I've mentioned, Lucy is resistant to some of the broad spectrum antibiotics that we are used to using.  To be honest, this scares me.

Drew and the kids came tonight.  When Lucy saw them she said, "I'm so happy to see you guys...I haven't seen you in awhile!".  Be still my beating mama heart!

So very very grateful for the wonderful people that God has placed in our life.  We have friends across the hall at the moment.  She took this picture of Lucy and me this morning and brought me breakfast from Dunkin Doughnuts:).

My husbands "work family" reached out to our family in the most amazing way,  I want to say thank you so much for all that you have done for us, it means so much!!!

Still no word from Baltimore, but brief talks were had with our main doc this morning about what we feel needs to get done.  What we want and what is going to happen, we are still working on the details of that.  I will share when I know more.

My emotions have been all over the place today.  I am going to blame it on the lack of sleep...yeah that's it.

Thank you so much for your thoughts and prayers, love and support!