Today Lucy spiked a fever despite being on antibiotics, as I type this the halls are ringing with the sound of Lucy's heart rate monitor alarming everyone that she is tachacardic. We increased her fentynol patch dosing and shortened the duration between patch changes to every 48 vs. 72 hours. Clearly after 14 PRN doses of dilaudid yesterday she was in need of more pain control. Lucy's line decided to give us grief today when it did not want to draw back any blood for lab work this morning. It progressively got worse throughout the morning, her pumps kept alarming "occlusion patient side". We TPA'd (yes, this is a verb in our world) her line this afternoon to get things flowing again. This evening her temps went even higher along with her heart rates which meant a stat EKG was ordered. We started our usual fever protocol and ramped up our antibiotic coverage all in an effort to bring down her fevers. I think we are now running a daily med schedule that is longer than 24 hours, how is that even possible!?! Lucy is scheduled for surgery up at Jefferson in Philadelphia on Wednesday morning at 8:30am, we'll just have to see if that will happen now. Ugh...
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Praying for peace, comfort, mercy and healing for you all.
Natalia
Praying for your whole family.
Sending prayers, too much of this sounds all too familiar. :( Do you get on FB at all? If so, and you'd like to chat, friend me at Jessica Shriver Hilliard (in Attleboro, MA). I wish could do more than pray, but I will certainly be lifting you up. ((hugs))
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