Thursday, December 19, 2013

Mama, I don't feel good...

Our secondary bladder issue, has become a more of a major issue.  Bladder pain was a huge problem for our girl today.  We attempted instilling her picky picky bladder with Lidocaine all in an effort to help Lucy cope with the discomfort.  She continues to require around the clock pain medicine despite her lipase trending down. 

"Mama I don't feel good" she said to me in her very quiet voice just before falling asleep.

When Lucy has been awake she is only comfortable for brief periods of time.  For the most part the above picture is what our girl has been doing for the past three weeks. Sleepy, sleepy Lucy her body fights so hard just to keep on living, she doesn't know how to live any other way. 

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