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December 11, 2013
We are home, safe and sound.  By the time we left the hospital this evening the snow had stopped and the roads were better.  The big kids are nestled all snug in their beds, while Lucy and I are snuggled together in my bed - infusing meds, what else is new.

Today's procedure was not quite as simple as we were hoping it would be, but then again is it ever really simple!?!

Our surgeon and IR doc came out to tell me the good, the bad, and the ugly.  Basically, the stoma tract has stretched out considerably, and as such it's becoming increasingly difficult place and keep a tube in it.  Our goal is to keep the tract open, but not necessarily draining because as long as Luc has a stent in her bile duct there is an outlet for bile to drain.  The benefit to keeping this tract is so that we have a back up for if and when there is ever a problem with her stent.  This tube serves as a window or a porthole into the area of her body that is a huge cause of concern.  It's very simple for us to inject a little contrast through her tube and see just how things are flowing without having to subject Lucy to repeated MRIs.  

While  attempting to suture the tube securely to Lucy the tip of the suture needle broke off causing our surgeon to have to make a small incision in our girl's abdomen to retrieve the broken piece of the needle…seriously.  To add insult to injury our surgeon accidentally dislodged the tube while all of this was happening and another tube had to be placed.  In his defense the tube does not stay in place without it being sutured.  Does anyone else see the irony in this?  As unbelievable as all of this sounds, it was humorous to hear them both tell me what had happened.

Unfortunately, Miss Lucy has had to deal with the brunt of all of this.  She was experiencing quite a bit more pain tonight as a result of all that she had to endure today.  Pain meds are a good thing.

When all was said and done another Malecot tube was finally sutured securely in place.  Here's hoping that it stays in place well into the new year!

I am declaring tomorrow a snow day for Lucy and I!   We are going to cozy up together and maybe make some gingerbread men... her favorite kind of men.

Thanks as always for your thoughts and prayers, love and support.
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