Pain, pain go away…please don’t come another day!!! It has been one long day/night/morning….Lucy’s heart rate when she is sleeping is in the 180’s-190’s, when she is awake I won’t even tell you because it is too scary to write. We are using several pain meds to try and keep her comfortable. Both Lucy’s g-tube and j-tube are attached to drainage. She is pouring out pea green bile, this is not unusual for our girl, but a major red flag for infection. Dr. R came in early this morning and said he would be shocked if this isn’t a line infection. What has us all concerned is that Lucy has been on continuous antibiotics since the middle of February in an effort to keep the infections at bay.
So far nothing is growing, but it’s early.
I will update more later.
On most days I can handle all of “this”, but when she is in pain none of “this” is bearable!
Your thoughts and prayers are appreciated.