Lucy is on a continuous IV infusion of Ketamine, Ketamine boluses as needed every hour, and morphine when necessary. The goal is to keep her comfortable. She continues to be on the Vapotherm which is helping her to breath and stay comfortable.
Her blood counts took a huge hit, and as a result we are currently transfusing her with packed red blood cells. I can’t wait to see how pink she will look in the morning.
Thank you so much for all of your thoughts and prayers, love and support!
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You don't know me and I honestly can't remember how I stumbled across your blog. Yet since I first started following your family I check your blog at least once a day. Lucy is beautiful and she clearly has a wonderful mother and family. I will continue to keep her, and her loving family in my prayers.
We continue to pray for Lucy and keep all of you in our thoughts and prayers.
this picture and post are breaking my heart. i'm sure your mommy heart is breaking too! please let us know if we can do anything at all!!! we are praying so hard for you guys!!
((((hugs)))) Im so sorry she needed to be transferred to the PICU now :( Praying hard for her tonight and every night. I can only imagine how scary this is for you all, prayers she makes a turn around very soon--
Heidi & Jack.
Little Miss Lucy, you need to pink up like the perfect little princess you are. Mom posted your picture as sleeping beauty, we just need to find that handsome prince to come and kiss you and break the spell, Do you think it is Daddy or Jack? Rest and heal and come back as the fiesty little princess we know and love. I am thinking of you and praying for you to make that turn around.
Love and hugs and kisses,
Helen
Continued prayers for Lucy and your family. I am so sorry she is struggling so much. I hate mito!
Oh my beautiful Lucy..i came to see you today and it breaks my heart seeing you like this...you need to wake up and get better so we can take your happy little self to Disney. you need to go have breakfest with cinderella. I love you and im praying for you each and every day & night. get better love bug.
love
anne
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